Updates

Hello, everyone! It has been quite awhile since I have posted anything here! Unfortunately, I often have memory issues and forget about it. I wake up some days with a lot of “brain fog,” and some days I am not as foggy. I am still unable to work due to the brain fog and weakness all over. I try to do different activities throughout each day. However, I tire very easily and sometimes experience dizzy spells. Currently, I have some shaking in my arms/hands. My oncologist is not sure what this may be from. I continue to have issues with taking pills everyday due to something called pill burden. I have tried applesauce, but the thought of it now makes me feel sick. I have switched back to using water. The advantage with that is I am not dehydrated! Thursday I went for an infusion of immunoglobulin to help build up my immune defenses. Unfortunately, we went to the incorrect location and ended up being 30 minutes late to the infusion. My oncology appointment that was that same day (at a different location) and had to be moved to a video visit. My oncologist removed some day medications and added one to my night meds. Also, we reviewed my last biopsy results and…there were no leukemia cells present!! Woohoo!! Also, there was no bad chromosome cells in the biopsy either! Eating is still a challenge, but a medication that was added is supposed to help with my nausea and help increase my appetite. I had graft versus host disease. What remains of that is on my face. It is super dry, and it feels like the rough side of a cleaning sponge. I miss my daily life…my house, my job, my friends, being able to go out wherever and whenever. I journal, do word searches, work on typing a book I wrote, work on a wreath, and decorate my parents’ house for each holiday.

My son is back at college, and he is doing great! He has made the Dean’s list every semester. I am so proud of his perseverance. We are extremely close, and I know my journey with leukemia has been difficult for him. Parents’ weekend is September 19-21. I don’t know if I will be able to go, but I pray I am able to! I did get to go last year, and it was so great to see my son in his college environment!

I am going to sign off for now. Until next time, I will be dancing with Luke!